Jillian Gilchrest

I am so grateful for the individuals who continue to share their experiences with Endometriosis Working Group. It is through listening to their experiences that we have been able to identify areas where we can increase awareness and access to care.

For those with endometriosis, endometrial-like tissue grows outside the uterus. Nearby reproductive organs are often affected but the disease has been found in every major organ system. Tissue can grow on or around a person’s ovaries, fallopian tubes, and beyond. Tissue growth can also spread to other organs, even if they’re not related to reproduction. Some people have endometriosis on or around their bowels, rectum, bladder and, in some cases, tissue may spread as far as the chest cavity.

Beyond the physical pain that over 194 million individuals with the endometriosis experience, those suffering from the disease are often misdiagnosed, told the pain is normal, or accused of making up their symptoms. The Endometriosis Working Group has announced several priorities to create greater awareness and expand access to care.

Priorities Include:

• Establishment of Connecticut’s Endometriosis Biorepository
• School Nurse Training
• Fertility Preservation
• Fertility Specialist Training and Screening
• Education for Students
• Menstrual Equity
• Access to Medical Care